Patient Advocacy & Survivorship

Posted: December 2017 Effective September 30, 2017, the Lung Cancer Research Foundation and Free to Breathe have merged organizations, with the goal of closing the funding gap for lung cancer research. The mission to improve lung cancer outcomes by funding research for the prevention, diagnosis, treatment, and cure of lung cancer continues in the newly…

By Keightley Amen, BA, ELS Posted: December 2017 While many people remain unaware of the advancements in the field of lung cancer and research spending still lags behind the funds spent to combat other types of cancer,2 lung cancer is the leading cause of cancer death worldwide.1 To bolster research spending, raise public awareness, and…

By Lori L. Alexander, MTPW, ELS, MWC Posted: December 2017 Since 2006, the Bonnie J. Addario Lung Cancer Foundation (ALCF) has brought together a diverse group of physicians, organizations, industry partners, and individuals, along with patients, survivors, and their families, to identify solutions and to make timely and meaningful changes in the research and management…

By Keightley Amen, BA, ELS Posted: October 2017 This November, survivors around the world will celebrate the second annual Lung Cancer Awareness Month (LCAM) Consortium. Together, they will celebrate a unique, new initiative that spreads hope and shares progress in the fight against lung cancer. Led by IASLC, a rapidly growing partnership of advocacy groups…

By Lori Alexander, MTPW, ELS, MWC® Ellen Sigal’s unsurpassed passion for cancer research advocacy was ignited 30 years ago after the devastating loss of her younger sister Gale to breast cancer. Her drive to make a difference led her to establish Friends of Cancer Research (Friends), a nonprofit advocacy organization based in Washington, DC. Since…

IASLC Lung Cancer News is pleased to present the following Q&A with the staff of Shanghai Cancer Recovery Club, an organization in Shanghai, China, whose mission is ‘’spreading the idea that cancer does not equal death, carrying forward the work of cancer fighting groups, and ‘transcending life’.’’ Please describe the purpose of the Shanghai Cancer…

Posted: June 2017 Editor’s note: IASLC Lung Cancer News is committed to including the patient’s voice and experience of having lung cancer as part of our editorial breadth and mission. Here we are pleased to present Deb Violette’s story. A courageous advocate and longterm survivor of lung cancer, Ms. Violette is also the president and…

By Nicola M. Parry, DVM Lung cancer survivor Kathy Weber is an ardent ambassador for the International Association for the Study of Lung Cancer (IASLC). “My involvement with the IASLC comes from attending the World Conference on Lung Cancer (WCLC), as well as a survivors’ get-together at their main office,” she explained, emphasizing how impressed…

By Lori Alexander, MTPW, ELS, MWC How does a person with stage IV lung cancer live a meaningful life? That’s the question Paul Kalanithi explores in When Breath Becomes Air, the number 1 book on the New York Times Best Sellers list. Kalanithi’s moving and honest reflection of his life as he transforms from physician…