Advocate Angus Pratt explores the issues patients face while researching their disease when inaccurate and out-of-date information is everywhere. Read more
Patient Advocacy in 2023: A Look Back at Advocacy Efforts, Patient Concerns
Angus Pratt, MBAPatient research advocate Angus Pratt reflects on the past year of advocacy coverage in ILCN and how the movement has evolved in recent years. Read more
Patient Perspective: Patients With EGFR+ NSCLC May Still Opt for Quality Over Quantity After FLAURA2
Ivy Elkins, MBAIn light of recent data from the study of osimertinib with or without chemotherapy, patient advocate Ivy Elkins said the results may sway some to add chemo to their first-line treatment plan. However, for others, the impact on quality of life will not be worth it. Read more
Media Training Improves Advocacy Reach, Increases Lung Cancer Awareness
Fred GebhartLungCAN Co-Chair Dusty Donaldson says training program helped just two advocates reach more than 630 million people in 32 states and five countries. Read more
Artificial Intelligence in Healthcare: A Patient Perspective
Angus Pratt, MBAWhen life-and-death decisions are at stake, will patients welcome AI to their care team? As part of ILCN’s series on AI in lung cancer, patient advocate Angus Pratt explores issues of trust, safety, accuracy, and more. Read more
Majority of NSCLC Patients from Low Socio-Economic Areas in England Do Not Receive Novel Anti-Cancer Therapies
Erin JungmeyerDespite access to free treatment within the National Health Service, patients in the most deprived areas were 55% less likely to receive targeted therapies, biologic treatments, and immunotherapy compared to residents in the least deprived areas. Read more
Advocacy group says its annual research events are key to its mission: Making EGFR-mutated lung cancer a manageable chronic disease. Read more
Advocate Terri Ann DiJulio knows the stigma associated with smoking must end if more lung cancer patients are to be diagnosed and treated early. The first step is talking about it. Read more
Patient Perspective: ‘Scanxiety’ Triggered by Cancer, Not Scans
Dusty DonaldsonPatient advocate Dusty Donaldson says for most patients regular surveillance is not the problem and points out limitations of data that fail to show better outcomes with frequent scanning. Read more
Studies that don’t show survival benefit with more frequent surveillance won’t convince patients they’re better off without scans. Even if regularly scheduled scans don’t help patients live longer, they do help them live better. Read more