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Home Patient Advocacy & Survivorship

More Than a Partnership: How Oncogene-Driven Patient Groups Are Mobilizing the Global Community to Drive Research

Upal Basu Roy
on: August 13, 2021In: Patient Advocacy & Survivorship
More Than a Partnership: How Oncogene-Driven Patient Groups Are Mobilizing the Global Community to Drive
            Research

It has been just over a year since we reported how oncogene-driven patient advocacy groups are disrupting the research paradigm in lung cancer.1 We have indeed come a long way […] Read more

Veterans Health Administration’s Lung Precision Oncology Program Helps Individualize Treatment

Michael Kelley
+more
on: July 16, 2021In: Patient Advocacy & Survivorship, Supportive & Palliative Care
Veterans Health Administration’s Lung Precision Oncology Program Helps Individualize Treatment

Lung cancer is not only the leading cause of cancer deaths in the United States, with nearly 229,000 people diagnosed annually, but is also the deadliest cancer affecting patients of […] Read more

Awareness-raising Bike Ride in The Netherlands Connected Hospitals, Patients

Ilima Loomis
on: June 18, 2021In: Patient Advocacy & Survivorship
Awareness-raising Bike Ride in The Netherlands Connected Hospitals, Patients

Patients and supporters cycled nearly 1,150 kilometers through The Netherlands on May 21, 2021 in a “White Ribbon Tour” to raise awareness for lung cancer.  The grassroots event was organized […] Read more

Survivorship in Lung Cancer: An Interview With Dr. Anne Katz

Anne Katz
on: May 21, 2021In: Patient Advocacy, Patient Advocacy & Survivorship
Survivorship in Lung Cancer: An Interview With Dr. Anne Katz

Anne Katz, PhD, RN, FAAN, is a certified sexuality counselor and clinical nurse specialist at Cancer Care Manitoba, Winnipeg, Canada, and the author of multiple books on cancer survivorship. In the following article, Dr. Katz discusses lung cancer survivorship challenges as well as considerations that providers should take... Read more

Lung Cancer Health Care Delivery, Community Building, and Research: Are They Truly Inclusive?

Jill Feldman
+more
on: November 11, 2020In: Patient Advocacy & Survivorship
Lung Cancer Health Care Delivery, Community Building, and Research: Are They Truly Inclusive?

Lung cancer was first identified as a distinct disease in 1761.1 Since this discovery, we have come a long way—both in terms of progress towards understanding the heterogeneous biology of […] Read more


Ending Stigma in Lung Cancer: The IASLC Participates in a Collaborative Summit Held by the National Lung Cancer Roundtable 

Jill Feldman
+more
on: October 15, 2020In: Patient Advocacy & Survivorship
Ending Stigma in Lung Cancer: The IASLC Participates in a Collaborative Summit Held by the National Lung
            Cancer Roundtable 

Stigma is any thinking or behavior that produces internal shame or external judgment toward a person, place, or thing.1 In healthcare, stigma could be any sociocultural norm that prevents a […] Read more

Disrupting the Paradigm: Partnering With Oncogene-Focused Patient Groups to Propel Research

Upal Basu Roy
on: April 16, 2020In: Patient Advocacy & Survivorship
Disrupting the Paradigm: Partnering With Oncogene-Focused Patient Groups to Propel Research

Genomic alterations drive more than 60% of adenocarcinoma cases of NSCLC.1  Approximately 25% of these cases will have an oncogenic driver (EGFR, ALK, ROS1, BRAF, or NTRK) that can be […] Read more

A Balancing Act: Managing Patients’ Expectations

on: December 10, 2019In: Patient Advocacy & Survivorship
A Balancing Act: Managing Patients’ Expectations

By Leah Lawrence Posted: December 11, 2019 Many patients newly diagnosed with lung cancer have difficulty navigating the world of cancer when unexpectedly and unwillingly thrust into it. In addition […] Read more


STARS Patient Research Advocate Training Program Seeks Patients and Caregivers

on: December 10, 2019In: Patient Advocacy & Survivorship
STARS Patient Research Advocate Training Program Seeks Patients and Caregivers

By Adam Mohrbacher Posted: December 11, 2019 Patients with lung cancer and their caregivers are becoming more empowered and knowledgeable than ever. As a result, lung cancer now has a […] Read more

From Patient to Patient Research Advocate: The STARS Journey

on: December 10, 2019In: Patient Advocacy & Survivorship
From Patient to Patient Research Advocate: The STARS Journey

By Adam Mohrbacher Posted: December 11, 2019 With the rise of organized lung cancer patient advocacy groups,1 patients, advocates, and caregivers are now playing a larger role than ever in […] Read more

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