Timely and relevant thoracic oncology news brought to you by the only global association dedicated to the multidisciplinary study of lung cancer.

Timely and relevant thoracic oncology news brought to you by the only global association dedicated to the multidisciplinary study of lung cancer.


Patient Advocacy & Survivorship


  • Disrupting the Paradigm: Partnering With Oncogene-Focused Patient Groups to Propel Research

    Disrupting the Paradigm: Partnering With Oncogene-Focused Patient Groups to Propel Research

    By

    Upal Basu Roy
    Patient Advocacy & Survivorship

    Genomic alterations drive more than 60% of adenocarcinoma cases of NSCLC.1  Approximately 25% of these cases will have an oncogenic driver (EGFR, ALK, ROS1, BRAF, or NTRK) that can be treated with approved targeted therapy drugs, and more (such as MET, RET, and exon 20 insertions) have clinical trial options.1  Patients and caregivers dealing with…


  • A Balancing Act: Managing Patients’ Expectations

    A Balancing Act: Managing Patients’ Expectations

    By

    Patient Advocacy & Survivorship

    By Leah Lawrence Posted: December 11, 2019 Many patients newly diagnosed with lung cancer have difficulty navigating the world of cancer when unexpectedly and unwillingly thrust into it. In addition to understanding their diagnosis, prognosis, and treatment options, patients are also bombarded with an abundance of information on the internet, direct-to-consumer advertising of new cancer…


  • STARS Patient Research Advocate Training Program Seeks Patients and Caregivers

    STARS Patient Research Advocate Training Program Seeks Patients and Caregivers

    By

    Patient Advocacy & Survivorship

    By Adam Mohrbacher Posted: December 11, 2019 Patients with lung cancer and their caregivers are becoming more empowered and knowledgeable than ever. As a result, lung cancer now has a growing group of patients who have lived long enough to become advocates for their disease. Some are evolving into research advocates— volunteers with a personal…


  • From Patient to Patient Research Advocate: The STARS Journey

    From Patient to Patient Research Advocate: The STARS Journey

    By

    Patient Advocacy & Survivorship

    By Adam Mohrbacher Posted: December 11, 2019 With the rise of organized lung cancer patient advocacy groups,1 patients, advocates, and caregivers are now playing a larger role than ever in raising awareness, providing education, and even driving research into the disease. In order to support this groundswell of passion and advocacy, the IASLC’s Supportive Training…


  • Letter to the Editor: Patient-Driven Research

    Letter to the Editor: Patient-Driven Research

    By

    Patient Advocacy & Survivorship

    By Jill Feldman, EGFR Resisters Co-Founder Posted: December 11, 2019   Jill Feldman I was so glad to see the article by Dr. Amy Moore on PDX models in the October issue. As a Co-Founder of the EGFR Resisters, our collaboration with the GO2 Foundation for Lung Cancer is empowering patients to participate in studies that…


  • GLCC and IASLC Form Partnership to Explore Progress in Lung Cancer Treatment

    GLCC and IASLC Form Partnership to Explore Progress in Lung Cancer Treatment

    By

    Patient Advocacy & Survivorship

    Posted: August 22, 2019 The Global Lung Cancer Coalition (GLCC) and the IASLC have formed a partnership to explore the progress that has been made in lung cancer treatment. Through a series of interviews with international experts across different dimensions of lung cancer, the IASLC and GLCC have been looking at what has changed in the…


  • Improving Clinical Trials Through Clinician, Patient Use of Social Media

    Improving Clinical Trials Through Clinician, Patient Use of Social Media

    By

    Patient Advocacy & Survivorship

    By DR CamidgePosted: March 1, 2019 The National Cancer Institute featured a workshop in June 2018 titled “At the Crossroads of Social Media and Clinical Trials: A Workshop on the Future of Clinician, Patient, and Community Engagement.” The two-day conference brought together key stakeholders in this area including clinical trialists, internet researchers, patient navigators, advocates,…


  • Nursing Care’s Technological Patient-Care Transformation

    Nursing Care’s Technological Patient-Care Transformation

    By

    Nursing & Allied Health, Patient Advocacy & Survivorship

    By John McPhelim, RN, BSc (Hons) Posted: March 1, 2019     Mr. John McPhelim Nursing—particularly communication—in lung cancer care is transforming as a result of the innovative use of supportive health technologies. Cell phones, tablets, laptops, and desktop computers are growing increasingly popular in the use of safety monitoring and communication with patients across…


  • After the Consultation: Social Media, Inter-Patient Communication, and Clinical Trials

    After the Consultation: Social Media, Inter-Patient Communication, and Clinical Trials

    By

    Patient Advocacy & Survivorship

    By D. R. Camidge Posted: October 2018 Between March 2017 and April 2018, nearly 20,000 new members signed up for the Lung Cancer Survivors Support Community on Inspire. At present, membership of this online community is over 90,000 individuals from more than 200 different countries. Physicians have always known that patients continue discussions with friends…


  • Motivated, Engaged, and Organized: The New Molecular Cohorts of Lung Cancer

    Motivated, Engaged, and Organized: The New Molecular Cohorts of Lung Cancer

    By

    Patient Advocacy & Survivorship

    By D.R. Camidge Posted: June 2018 Just as physicians and scientists no longer treat lung cancer as a single disease because of molecular distinctions, patient advocacy groups also are becoming organized along molecular lines. In 2015, Janet Freeman-Daily, Lisa Goldman, and Tori Tomalia—all ROS1– positive NSCLC survivors—co-founded a private Facebook group, ”ROS1 Positive (ROS1+) Cancer.”…