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Home Patient Advocacy

GO2 Foundation for Lung Cancer Aims to Create Resources for Caregivers

Joy Curzio
on: February 09, 2022In: Patient Advocacy
GO<sub>2</sub> Foundation for Lung Cancer Aims to Create Resources for Caregivers

A new survey provides a voice for caregivers regarding the challenges they face and rewards they gain from lung cancer co-survivorship. Read more


LungMATCH Program Models Best Practices for Empowering Patients

Beth Fand Incollingo
on: January 26, 2022In: Patient Advocacy
LungMATCH Program Models Best Practices for Empowering Patients

For people diagnosed with lung cancer and their families, understanding the illness and its treatments enough to participate in healthcare decisions can be challenging. Patients may not understand the benefits […] Read more

The Art and Science of Patient–Doctor Communication

Corey Langer, MD
+more
on: January 26, 2022In: Evolving Standards of Care, Patient Advocacy
The Art and Science of Patient–Doctor Communication

When facing a grave illness, especially for the first time, many people are worried, frightened, and overwhelmed. They may have difficulty focusing their attention on daily tasks and experience skewed […] Read more

Advocacy for Patients With Lung Cancer: Getting Involved at the Government Level in the United States

Liz Dols
on: November 26, 2021In: Patient Advocacy
Advocacy for Patients With Lung Cancer: Getting Involved at the Government Level in the United States

Every meeting begins with sharing your story. In summary, this is mine: My name is Liz, and I’m one of your constituents. I was diagnosed with lung cancer 15 years […] Read more

Toward More Inclusive, Accessible Clinical Trial Consent Forms

Jim Incollingo
on: October 15, 2021In: Patient Advocacy
Toward More Inclusive, Accessible Clinical Trial Consent Forms

It is a trend many years in the making, but the time is ripe to fix the increasing problems with clinical trial consent documentation. The word count and complexity of […] Read more

The IASLC Language Guide: A Lexicon of Healing for Lung Cancer and Beyond

on: July 02, 2021In: Patient Advocacy
The IASLC Language Guide: A Lexicon of Healing for Lung Cancer and Beyond

America’s decades-long war on smoking has been remarkably successful in reducing smoking rates, but the unintended consequences include stigmatizing people who smoke and people with lung cancer. Sadly, those dealing […] Read more

Survivorship in Lung Cancer: An Interview With Dr. Anne Katz

Anne Katz
on: May 21, 2021In: Patient Advocacy, Patient Advocacy & Survivorship
Survivorship in Lung Cancer: An Interview With Dr. Anne Katz

Anne Katz, PhD, RN, FAAN, is a certified sexuality counselor and clinical nurse specialist at Cancer Care Manitoba, Winnipeg, Canada, and the author of multiple books on cancer survivorship. In the following article, Dr. Katz discusses lung cancer survivorship challenges as well as considerations that providers should take... Read more

The Importance of Shared Decision Making: A Patient’s Perspective on Skin Toxicity with Afatinib/Cetuximab

Valerie Aladieff
on: April 30, 2021In: Patient Advocacy
The Importance of Shared Decision Making: A Patient’s Perspective on Skin Toxicity with
            Afatinib/Cetuximab

Although the importance of multidisciplinary care teams is known, unfortunately, cross-specialty knowledge is not always solicited or recommended Read more

Consortium of Advocacy Groups, Professional Societies, and Industry Develops Consistent Language for Cancer Precision Medicine Testing

Jennifer Byrne
on: April 21, 2021In: Patient Advocacy
Consortium of Advocacy Groups, Professional Societies, and Industry Develops Consistent Language for
            Cancer Precision Medicine Testing

In recent years, precision medicine has begun to play an increasingly important role in cancer care. Advanced diagnostic testing, including testing for somatic mutations, non-genomic biomarkers, and germline mutations, is […] Read more

Comparing Patient-Reported Outcomes in the CROWN Study

ALK Positive Medical Committee
on: January 30, 2021In: Patient Advocacy
Comparing Patient-Reported Outcomes in the CROWN Study

The abstract “Patient-reported outcomes from the randomized Phase 3 CROWN study of first-line lorlatinib versus crizotinib in ALK+ NSCLC” by Mazieres et al., presents a welcome analysis of symptoms and […] Read more

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