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Home Patient Advocacy

Artificial Intelligence in Healthcare: A Patient Perspective

Angus Pratt, MBA
on: July 11, 2023In: Evolving Standards of Care, Patient Advocacy
Artificial Intelligence in Healthcare: A Patient Perspective

When life-and-death decisions are at stake, will patients welcome AI to their care team? As part of ILCN’s series on AI in lung cancer, patient advocate Angus Pratt explores issues of trust, safety, accuracy, and more. Read more


Majority of NSCLC Patients from Low Socio-Economic Areas in England Do Not Receive Novel Anti-Cancer Therapies

Erin Jungmeyer
on: June 13, 2023In: Patient Advocacy
Majority of NSCLC Patients from Low Socio-Economic Areas in England Do Not Receive Novel Anti-Cancer Therapies

Despite access to free treatment within the National Health Service, patients in the most deprived areas were 55% less likely to receive targeted therapies, biologic treatments, and immunotherapy compared to residents in the least deprived areas. Read more

EGFR Resisters Announce 5th Annual Research Summit

Erin Jungmeyer
on: May 24, 2023In: Patient Advocacy
EGFR Resisters Announce 5th Annual Research Summit

Advocacy group says its annual research events are key to its mission: Making EGFR-mutated lung cancer a manageable chronic disease. Read more

The Weight of Shame

Terri Ann DiJulio
on: May 09, 2023In: Patient Advocacy
The Weight of Shame

Advocate Terri Ann DiJulio knows the stigma associated with smoking must end if more lung cancer patients are to be diagnosed and treated early. The first step is talking about it. Read more

Patient Perspective: ‘Scanxiety’ Triggered by Cancer, Not Scans

Dusty Donaldson
on: March 07, 2023In: Patient Advocacy
Patient Perspective: ‘Scanxiety’ Triggered by Cancer, Not Scans

Patient advocate Dusty Donaldson says for most patients regular surveillance is not the problem and points out limitations of data that fail to show better outcomes with frequent scanning. Read more

Patient Perspective: Me, Myself, and Scanxiety

Laura Floyd
on: February 21, 2023In: Patient Advocacy
Patient Perspective: Me, Myself, and Scanxiety

Studies that don’t show survival benefit with more frequent surveillance won’t convince patients they’re better off without scans. Even if regularly scheduled scans don’t help patients live longer, they do help them live better. Read more

Committee Update: Advocates Offer Unique Support to Members, Help Investigators Understand Patients

Erin Jungmeyer
on: February 07, 2023In: Patient Advocacy, Society News
Committee Update: Advocates Offer Unique Support to Members, Help Investigators Understand Patients

Patient Advocates Committee Chair Jill Feldman said ensuring the patient voice is present in research helps to improve the work being done to reduce the burden of lung cancer worldwide. Read more

Financial Toxicity of Lung Cancer in the Netherlands

Anne-Marie C. Dingemans, MD, PhD
+more
on: May 11, 2022In: Patient Advocacy
Financial Toxicity of Lung Cancer in the Netherlands

Even when treatment costs are covered, the majority of lung cancer patients experience increased expenses and/or reduced income following their diagnoses. Read more

As Treatment Options in Lung Cancer Have Expanded, so Have Costs

Giulia Pasello, MD, PhD
+more
on: May 11, 2022In: Evolving Standards of Care, Patient Advocacy
As Treatment Options in Lung Cancer Have Expanded, so Have Costs

A real-world look at diagnostic-therapeutic pathways explores how they may help provide optimal, innovative care without ballooning costs. Read more

Patient Perspective: The Promise of Personalized Medicine

Angus Pratt, MBA
on: April 12, 2022In: Evolving Standards of Care, Patient Advocacy
Patient Perspective: The Promise of Personalized Medicine

Growing treatment options for patients with late-stage lung cancer bring hope—and challenges. Read more

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