Timely and relevant thoracic oncology news brought to you by the only global association dedicated to the multidisciplinary study of lung cancer.

Timely and relevant thoracic oncology news brought to you by the only global association dedicated to the multidisciplinary study of lung cancer.

Patient Advocacy

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  • LungMATCH Program Models Best Practices for Empowering Patients

    LungMATCH Program Models Best Practices for Empowering Patients

    By

    Beth Fand Incollingo
    Patient Advocacy

    For people diagnosed with lung cancer and their families, understanding the illness and its treatments enough to participate in healthcare decisions can be challenging. Patients may not understand the benefits of personalized treatment or how to obtain it, whether that involves ensuring that tumor tissue undergoes biomarker testing, choosing among standard treatments, or seeking novel…

  • The Art and Science of Patient–Doctor Communication

    The Art and Science of Patient–Doctor Communication

    By

    Corey J. Langer, MD, FACP, et al.
    Evolving Standards of Care, Patient Advocacy

    When facing a grave illness, especially for the first time, many people are worried, frightened, and overwhelmed. They may have difficulty focusing their attention on daily tasks and experience skewed perceptions and memories based on intense emotions. This distress can also adversely affect the course and severity of disease and the success of its treatment.…

  • Advocacy for Patients With Lung Cancer: Getting Involved at the Government Level in the United States

    Advocacy for Patients With Lung Cancer: Getting Involved at the Government Level in the United States

    By

    Patient Advocacy

    Every meeting begins with sharing your story. In summary, this is mine: My name is Liz, and I’m one of your constituents. I was diagnosed with lung cancer 15 years ago. During those 15 years, I have been on some sort of treatment for my disease all but 8 months. I am a direct beneficiary…

  • Toward More Inclusive, Accessible Clinical Trial Consent Forms

    Toward More Inclusive, Accessible Clinical Trial Consent Forms

    By

    Patient Advocacy

    It is a trend many years in the making, but the time is ripe to fix the increasing problems with clinical trial consent documentation. The word count and complexity of mandated information in informed consent forms have been multiplying, but their value remains dubious. In 2016, Danish researchers studying consent forms found that “a considerable…

  • The IASLC Language Guide: A Lexicon of Healing for Lung Cancer and Beyond

    The IASLC Language Guide: A Lexicon of Healing for Lung Cancer and Beyond

    By

    Patient Advocacy

    America’s decades-long war on smoking has been remarkably successful in reducing smoking rates, but the unintended consequences include stigmatizing people who smoke and people with lung cancer. Sadly, those dealing with lung cancer continually encounter hurtful statements born of ignorance or thoughtlessness (questions such as, “Do you smoke?”), along with the burden of having to…

  • Survivorship in Lung Cancer: An Interview With Dr. Anne Katz

    Survivorship in Lung Cancer: An Interview With Dr. Anne Katz

    By

    Patient Advocacy, Patient Advocacy & Survivorship

    Anne Katz, PhD, RN, FAAN, is a certified sexuality counselor and clinical nurse specialist at Cancer Care Manitoba, Winnipeg, Canada, and the author of multiple books on cancer survivorship. In the following article, Dr. Katz discusses lung cancer survivorship challenges as well as considerations that providers should take to ensure that this population is receiving…

  • The Importance of Shared Decision Making: A Patient’s Perspective on Skin Toxicity with Afatinib/Cetuximab

    The Importance of Shared Decision Making: A Patient’s Perspective on Skin Toxicity with Afatinib/Cetuximab

    By

    Patient Advocacy

    Although the importance of multidisciplinary care teams is known, unfortunately, cross-specialty knowledge is not always solicited or recommended

  • Consortium of Advocacy Groups, Professional Societies, and Industry Develops Consistent Language for Cancer Precision Medicine Testing

    Consortium of Advocacy Groups, Professional Societies, and Industry Develops Consistent Language for Cancer Precision Medicine Testing

    By

    Patient Advocacy

    In recent years, precision medicine has begun to play an increasingly important role in cancer care. Advanced diagnostic testing, including testing for somatic mutations, non-genomic biomarkers, and germline mutations, is likely to be involved to some degree in comprehensive treatment for most cancers. Despite the relevance of this type of testing as a major component…

  • Comparing Patient-Reported Outcomes in the CROWN Study

    Comparing Patient-Reported Outcomes in the CROWN Study

    By

    Patient Advocacy

    The abstract “Patient-reported outcomes from the randomized Phase 3 CROWN study of first-line lorlatinib versus crizotinib in ALK+ NSCLC” by Mazieres et al., presents a welcome analysis of symptoms and health-related quality of life (QOL) in those patients receiving the ALK inhibitors crizotinib vs. lorlatinib. We at ALK Positive, a patient-directed support and advocacy group,…

  • Cultural Perceptions of End-of-Life Communication

    Cultural Perceptions of End-of-Life Communication

    By

    Patient Advocacy

    Palliative and end of life care discussions are significant and essential, yet sensitive and challenging. Cultural perceptions of pain and end of life can filter nuances in provider communication in ways that may impact team trust, acceptance, and care for the patients.  In their WCLC abstract, Bonnie Leung, NP, and colleagues explored this topic with…

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