Timely and relevant thoracic oncology news brought to you by the only global association dedicated to the multidisciplinary study of lung cancer.

Timely and relevant thoracic oncology news brought to you by the only global association dedicated to the multidisciplinary study of lung cancer.


Patient Advocacy & Survivorship


  • Knowing Before We Can Act: The Value of MRD Testing From a Patient’s Perspective

    Knowing Before We Can Act: The Value of MRD Testing From a Patient’s Perspective

    By

    Jan Pezarro
    Evolving Standards of Care, Patient Advocacy & Survivorship

    While MRD testing does not eliminate the uncertainty of recurrence, Jan Pezarro explains how advanced molecular testing provides invaluable clarity for patients.


  • The Importance of Compassion and Clear Communication: A Patient Advocate Perspective

    The Importance of Compassion and Clear Communication: A Patient Advocate Perspective

    By

    Kate Sinclair
    Patient Advocacy & Survivorship

    Patient advocate Kate Sinclair shares why communication is one of the most important tools for improving the patient experience during their lung cancer journey.


  • Patient Charts: How to Carefully Manage Patient Access to Health Information

    Patient Charts: How to Carefully Manage Patient Access to Health Information

    By

    Angus Pratt, MBA
    Evolving Standards of Care, Patient Advocacy & Survivorship, Pro/Con Perspective

    Advocate Angus Pratt explores the pros and cons of patient access to electronic health records and discusses how the emergence of AI—with human oversight—could offer a way to navigate this complex issue.


  • Lost in Translation: Survey Reveals Critical Communication Gaps in Lung Cancer Care

    Lost in Translation: Survey Reveals Critical Communication Gaps in Lung Cancer Care

    By

    Haleigh Behrman
    Meeting News, Patient Advocacy & Survivorship, WCLC News

    Complex information and poor communication were identified as major obstacles to meaningful participation in decision-making, according to data presented by patient advocate Debra Montague.


  • More Than a Partnership: How Oncogene-Driven Patient Groups Are Mobilizing the Global Community to Drive
            Research

    More Than a Partnership: How Oncogene-Driven Patient Groups Are Mobilizing the Global Community to Drive Research

    By

    Upal Basu Roy
    Patient Advocacy & Survivorship

    It has been just over a year since we reported how oncogene-driven patient advocacy groups are disrupting the research paradigm in lung cancer.1 We have indeed come a long way since the discovery of the first EGFR mutation in lung cancer in 2004.2 ,3 Even amid the challenges of the global COVID-19 pandemic, the lung…


  • Veterans Health Administration’s Lung Precision Oncology Program Helps Individualize Treatment

    Veterans Health Administration’s Lung Precision Oncology Program Helps Individualize Treatment

    By

    Michael Kelley, et al.
    Patient Advocacy & Survivorship, Supportive & Palliative Care

    Lung cancer is not only the leading cause of cancer deaths in the United States, with nearly 229,000 people diagnosed annually, but is also the deadliest cancer affecting patients of the Veterans Health Administration (VHA). More than 900,000 Veterans are at risk of developing lung cancer because of advanced age, environmental exposures, and/or smoking, according…


  • Awareness-raising Bike Ride in The Netherlands Connected Hospitals, Patients

    Awareness-raising Bike Ride in The Netherlands Connected Hospitals, Patients

    By

    Patient Advocacy & Survivorship

    Patients and supporters cycled nearly 1,150 kilometers through The Netherlands on May 21, 2021 in a “White Ribbon Tour” to raise awareness for lung cancer.  The grassroots event was organized by Niels Harthoorn, age 22, an industrial engineering and management student at the University of Twente, and a patient with lung cancer. For the ride,…


  • Survivorship in Lung Cancer: An Interview With Dr. Anne Katz

    Survivorship in Lung Cancer: An Interview With Dr. Anne Katz

    By

    Patient Advocacy, Patient Advocacy & Survivorship

    Anne Katz, PhD, RN, FAAN, is a certified sexuality counselor and clinical nurse specialist at Cancer Care Manitoba, Winnipeg, Canada, and the author of multiple books on cancer survivorship. In the following article, Dr. Katz discusses lung cancer survivorship challenges as well as considerations that providers should take to ensure that this population is receiving…


  • Lung Cancer Health Care Delivery, Community Building, and Research: Are They Truly Inclusive?

    Lung Cancer Health Care Delivery, Community Building, and Research: Are They Truly Inclusive?

    By

    Jill Feldman, MA, et al.
    Patient Advocacy & Survivorship

    Lung cancer was first identified as a distinct disease in 1761.1 Since this discovery, we have come a long way—both in terms of progress towards understanding the heterogeneous biology of the disease and translating this understanding into action by development of new treatments.2 Indeed, since 2015, the United States Food and Drug Administration (FDA) has…


  • Ending Stigma in Lung Cancer: The IASLC Participates in a Collaborative Summit Held by the National Lung
            Cancer Roundtable 

    Ending Stigma in Lung Cancer: The IASLC Participates in a Collaborative Summit Held by the National Lung Cancer Roundtable 

    By

    Jill Feldman, MA, et al.
    Patient Advocacy & Survivorship

    Stigma is any thinking or behavior that produces internal shame or external judgment toward a person, place, or thing.1 In healthcare, stigma could be any sociocultural norm that prevents a patient’s access to or experience of high-quality care. With lung cancer in particular, patients often feel stigmatized by clinicians, patients, family, friends, and within themselves…