Patient Perspective: Patients With EGFR+ NSCLC May Still Opt for Quality Over Quantity After FLAURA2
Ivy Elkins, MBAIn light of recent data from the study of osimertinib with or without chemotherapy, patient advocate Ivy Elkins said the results may sway some to add chemo to their first-line treatment plan. However, for others, the impact on quality of life will no... Read more
Artificial Intelligence in Healthcare: A Patient Perspective
Angus Pratt, MBAWhen life-and-death decisions are at stake, will patients welcome AI to their care team? As part of ILCN’s series on AI in lung cancer, patient advocate Angus Pratt explores issues of trust, safety, accuracy, and more. Read more
Patient Perspective: ‘Scanxiety’ Triggered by Cancer, Not Scans
Dusty DonaldsonPatient advocate Dusty Donaldson says for most patients regular surveillance is not the problem and points out limitations of data that fail to show better outcomes with frequent scanning. Read more
Studies that don’t show survival benefit with more frequent surveillance won’t convince patients they’re better off without scans. Even if regularly scheduled scans don’t help patients live longer, they do help them live better. Read more
Patient Perspective: The Promise of Personalized Medicine
Angus Pratt, MBAGrowing treatment options for patients with late-stage lung cancer bring hope—and challenges. Read more
Patient Perspective: Anxiety Follows Abrupt Departure From Clinical Trial
Julie Swedberg, CPAThe onboarding required to participate in a clinical trial is extensive. The offboarding, however, can feel like abandonment for some patients. Read more
Patient Perspectives on CT and PET Scans: Imaging Technology Provides Different Benefits, Drawbacks for Each Individual Patient
Ivy Elkins, MBA+more
For patients with metastatic lung cancer, frequent scans are a stark reality of living with cancer. Although most scans happen every 3 months, some clinical trials require scans more often […] Read more
Patient Perspectives on Telehealth During COVID-19: Balancing Fear, Self-Advocacy
By Jennifer Byrne Posted: August 21, 2020 For nearly 2 decades, Bonnie Anderson has defied incredible odds in the face of mesothelioma, hairy cell leukemia, breast cancer, lung cancer, and […] Read more
The Importance of Shared Decision Making: A Patient’s Perspective on Skin Toxicity with Afatinib/Cetuximab
Valerie AladieffAlthough the importance of multidisciplinary care teams is known, unfortunately, cross-specialty knowledge is not always solicited or recommended Read more
Patient Advocacy in 2023: A Look Back at Advocacy Efforts, Patient Concerns
Angus Pratt, MBAPatient research advocate Angus Pratt reflects on the past year of advocacy coverage in ILCN and how the movement has evolved in recent years. Read more